Hemo-goblin and the gremlins that go bump in the night

Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar? That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done…

Brittle Heart

A little poem I wrote back in 2014, must have had a bad night.  My heart feels brittle It’s crumbling away to dust These tears keep leaking And I’m starting to rust

Inflamm whim wham

It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon. I had a very recent visit with my ibd nurse, this is only the second time…

Pain pain go away

The thing with crohns is I look perfectly normal on the outside. I can smile like I’m happy, walk normally and talk like it’s going out of fashion. It’s a facade, a very good front. It’s easy for people to forget that I have an incurable disease or for those that don’t know me to…