IBD Patient Education Programme
I attended my first ever IBD patient education programme recently, this was a big step for me as I don’t like being alone with people I don’t know, where you normally have to make some small talk and I generally feel uncomfortable in these environments, aswell as fear of the unknown.
For those who are interested it kinda says what it does on the tin, it’s a Programme of education and support by IBD Nurses and Doctors for people living with IBD. This particular one was about drug treatment.
I went not really thinking I was going to come out armed with a new list of things I need to do better or fix or how to better handle my IBD, I went because I was curious, and boy am I glad I did.
My boyfriend dutifully dropped me off at the hotel, I sidled in early, gave my name to the wonderful volunteers from Crohns & Colitis UK, and made my merry way into the conference room where I was trying to make myself as inconspicious as possible at the back. Then because I couldn’t see the screen moved to sit up front anyway.
It was a very interesting session, it was nice to hear from consultants and nurses, there was alot of talk about the sciencey stuff of which some information went in and other bits were more complex and sailed a little over my head.
What I took from this was that I wish I had been to something like that very early from diagnosis not 2 years down the line. Why?
Because these things make you feel less alone, you see different people from different walks a life all putting on the same brave face that I stick on myself every day, just trying to get on with life.
It can be very easy to think we are alone with this disease, after all when you live and breathe it every day, it’s a personal battle with your own body.
However I think it is important to get educated, learn and get support, while it won’t fix IBD, it helps us grow as individuals and you never know along the way you might meet a few people that make it just a little bit brighter.