Faking It

The lie behind the smile

Most days I can function, I am now in a place where my medication is making me as stable as I’m going to get. So I can plaster on a smile and hide my pain for the world, as I go about my daily life.

The small annoyances of the day to day hum drum I usually ignore. For the people that know me will confirm that I am not a patient person, so when a bad day hits it’s so much harder to fake it.

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Crohn’s Limerick

There was a young woman with Crohn’s

She could feel it right down to her bones

She let out a fart

And it gave her a start

“If only ’twas only a fart” she groans

Chronie in York

This weekend I went away for a day/night in York. It struck me as I was packing how much we have to pre plan when living with a chronic illness. I didn’t book a hostel as I was worried about the toilet facilities and I was carrying more pills than than the what felt like the local pharmacy.

On the car journey my stomach started playing up in slow moving traffic, immense pain that came in waves. I also had to do a few mad dashes while in york to the local pubs to use the toilet facilities. I even used my Radar Key for the first time to open a disabled toilet that I spotted had the national key scheme on it.

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Awareness

On saturday morning I was helping marshall a walking event with the Mothers Union group, after the walk I got talking to a few of the members about Crohns and that I had it. One lady mentioned that it would be really good if I could come to a mothers union evening and talk about the disease. Read More

Lets talk about Drugs

I am now a year into my journey with Crohns and while I’m no expert I’ve taken my fair share of meds for the disease and wanted to share my experience with the drugs that I have been on and that I am currently on so far. Read More

Local Trotter Out

IBD is a funny old thing, I got up at 9.30 this morning, which is later than my normal diseased tummy allows (pre disease 10.30 lie in at weekends, scandalous I know) and seeing as it was a sunny day, I decided it would be nice to drag my carcass outside.

Went for a lovely local walk with my partner along some fublic puffpaths (public footpath to everyone else)

I had a few wobbles along the way where my stomach started groaning and I thought Oh god please don’t let me be caught short (them brambles, sparse woodland and dry leaves didn’t look like good toilet ground)

A year ago I thought I’d be trapped in the house more often and that would be my life – but things are so changeable, I figure it’s best to seize what you can when you can as you don’t always know what’s around the corner. (Here’s hoping it’s a very convenient toilet)

Happy Trotting Everyone

Belonging – Community

Having any illness or disease can be lonely. Now I have never been a social butterfly, but since my diagnosis and having periods of unwell where I haven’t felt like leaving the house and I have started to feel isolated and withdrawn. I joined the crohns and colitis facebook group to more understand that there were more people just like me who got IT, and understood what I was going through.

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