Chronie in York

This weekend I went away for a day/night in York. It struck me as I was packing how much we have to pre plan when living with a chronic illness. I didn’t book a hostel as I was worried about the toilet facilities and I was carrying more pills than than the what felt like the local pharmacy.

On the car journey my stomach started playing up in slow moving traffic, immense pain that came in waves. I also had to do a few mad dashes while in york to the local pubs to use the toilet facilities. I even used my Radar Key for the first time to open a disabled toilet that I spotted had the national key scheme on it.

Despite my crohns making an appearance quite regularly I had a really great weekend. I was determined that I wasn’t going to allow IBD to rule my life. Yes, I am currently on medication that has allowed some of symptons to calm down and Yes, I had to make adjustments while I was out, but still came away knowing I can still have good times while living with IBD.

It can limit me at times, but it will never take my freedom! You can still live a full life with a chronic disease. Keep fighting all you amazing warriors.

Live, love and be happy

Out of the “Gut”ter

Somedays my Crohns just feels like it wants to win, it can be a real struggle just to get out of bed in a morning and to carry on through a working day like everything is “Normal”.

When you haven’t slept a wink because you feel like dog poo warmed up, and your stomach is churning and you think you might vomit in the night – It IS a constant battle.

Today it has been particulaly pesky, and in the words of Gilderoy Lockhart Peskipiksi PesterCrohnie. (ok he didn’t say that in Harry Potter)

THE ELEPHANT IN THE ROOM has been nagging at my every thought, poking my insides where no one can see. Every twinge has been a gut wrenching reminder that it isn’t going to sod of anytime soon however much I might wish it so.

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The night before IV iron infusion #2

Im lying awake at unsociable hours, when yet again my brain kicks into gear. When the world is silent I am thinking, what next, what now.

I know this is futile, but that’s how my mind works, it seems to think it can solve all my problems when really I should be sleeping. 

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Fads, kooks and crooks, Fact not fiction

Some days I feel as though I gave myself this illness, that I should feel guilty that I have a chronic disease that can’t be cured. This is madness I know. We are constantly surrounded by news stories or articles and even other people who have no medical background telling us we ate the wrong things or didn’t exercise enough.

I have lived for many years suffering with symptoms of #ibd and felt like a fraud or a hypocondriac because my medical professionals didn’t connect the dots or didn’t believe me.

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I get knocked down but I get up again. 

#crohns you’re never going to keep me down.

This past week I have pushed my body beyond its means, I refused to believe that I was that Ill. I should have listened to the warning signs that I was over doing it. 

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Hemo-goblin and the gremlins that go bump in the night

Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar?

That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done that much?

IRON. And no I don’t mean the kind that takes the wrinkles out of your clothes, not that I could manage it anyway I’m too bloody knackered.  Read More

Inflamm whim wham

It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon.

I had a very recent visit with my ibd nurse, this is only the second time I’ve seen her since diagnosis but on both occasions she has been amazing.

On the first occasion it was a few months since diagnosis this year and it was mainly to discuss starting the biologic humira (injection pens to you & me). This time however was to discuss how my symptoms were since starting the meds and a general overview of my health.

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