Chronie in York

This weekend I went away for a day/night in York. It struck me as I was packing how much we have to pre plan when living with a chronic illness. I didn’t book a hostel as I was worried about the toilet facilities and I was carrying more pills than than the what felt like…

Out of the “Gut”ter

Somedays my Crohns just feels like it wants to win, it can be a real struggle just to get out of bed in a morning and to carry on through a working day like everything is “Normal”. When you haven’t slept a wink because you feel like dog poo warmed up, and your stomach is…

The night before IV iron infusion #2

Im lying awake at unsociable hours, when yet again my brain kicks into gear. When the world is silent I am thinking, what next, what now. I know this is futile, but that’s how my mind works, it seems to think it can solve all my problems when really I should be sleeping. 

Fads, kooks and crooks, Fact not fiction

Some days I feel as though I gave myself this illness, that I should feel guilty that I have a chronic disease that can’t be cured. This is madness I know. We are constantly surrounded by news stories or articles and even other people who have no medical background telling us we ate the wrong…

I get knocked down but I get up again. 

#crohns you’re never going to keep me down. This past week I have pushed my body beyond its means, I refused to believe that I was that Ill. I should have listened to the warning signs that I was over doing it. 

Hemo-goblin and the gremlins that go bump in the night

Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar? That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done…

Inflamm whim wham

It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon. I had a very recent visit with my ibd nurse, this is only the second time…