In Joyful things we hide

In juletide joy And festive glee There was a girl named Kelly Marie That holiday cheer Making her sneer Poor lass who’s still not pain free In seasons blessings And gift giving free Please spare a thought for what you cannot see

Chronie in York

This weekend I went away for a day/night in York. It struck me as I was packing how much we have to pre plan when living with a chronic illness. I didn’t book a hostel as I was worried about the toilet facilities and I was carrying more pills than than the what felt like…

The Measure of Success

“The only real failure is the failure to try, and the measure of success is how we cope with disappoinment – Deborah Moggach” I do try to hold this quote true to my heart. Life can be a struggle already, throw a chronic illness into that mix and all sanity can go out of the…

The night before IV iron infusion #2

Im lying awake at unsociable hours, when yet again my brain kicks into gear. When the world is silent I am thinking, what next, what now. I know this is futile, but that’s how my mind works, it seems to think it can solve all my problems when really I should be sleeping. 

 IV iron infusion #1

Soooo I haven’t been posting as regularly as I would have hoped, my naughty stomach gremlins are on the prowl. I don’t know if its because I fed them after midnight or what but gizmo and his buddies aren’t happy.

The Force within

Me and my partner went to watch the new star wars, the last Jedi the other weekend. Why is this relevant you wonder? Saturday morning rolled round and I hadn’t made a decision to go anywhere, In fact I had not even made the decision to get out of bed.