Soooo I haven’t been posting as regularly as I would have hoped, my naughty stomach gremlins are on the prowl. I don’t know if its because I fed them after midnight or what but gizmo and his buddies aren’t happy.
Me and my partner went to watch the new star wars, the last Jedi the other weekend. Why is this relevant you wonder?
Saturday morning rolled round and I hadn’t made a decision to go anywhere, In fact I had not even made the decision to get out of bed.
Some days I feel as though I gave myself this illness, that I should feel guilty that I have a chronic disease that can’t be cured. This is madness I know. We are constantly surrounded by news stories or articles and even other people who have no medical background telling us we ate the wrong things or didn’t exercise enough.
I have lived for many years suffering with symptoms of #ibd and felt like a fraud or a hypocondriac because my medical professionals didn’t connect the dots or didn’t believe me.
#crohns you’re never going to keep me down.
This past week I have pushed my body beyond its means, I refused to believe that I was that Ill. I should have listened to the warning signs that I was over doing it.
Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar?
That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done that much?
IRON. And no I don’t mean the kind that takes the wrinkles out of your clothes, not that I could manage it anyway I’m too bloody knackered. Read More
A little poem I wrote back in 2014, must have had a bad night.
My heart feels brittle
It’s crumbling away to dust
These tears keep leaking
And I’m starting to rust
So bit by bit
And pill by pill
My heart will stop beating
And the world will stand still
This loneliness is feeding the darkness that’s trapped inside,
It’s seeping out and I’ve nowhere to hide.
I have no escape and no release,
All I’m looking for is a friend
So that this pain with cease
It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon.
I had a very recent visit with my ibd nurse, this is only the second time I’ve seen her since diagnosis but on both occasions she has been amazing.
On the first occasion it was a few months since diagnosis this year and it was mainly to discuss starting the biologic humira (injection pens to you & me). This time however was to discuss how my symptoms were since starting the meds and a general overview of my health.