Poem – Doctors note

Doctors note

I begged and I pleaded
I asked for help that I needed
But you waved me away
Its my IBS you would say

Read More

Lets talk about Drugs

I am now a year into my journey with Crohns and while I’m no expert I’ve taken my fair share of meds for the disease and wanted to share my experience with the drugs that I have been on and that I am currently on so far. Read More

Local Trotter Out

IBD is a funny old thing, I got up at 9.30 this morning, which is later than my normal diseased tummy allows (pre disease 10.30 lie in at weekends, scandalous I know) and seeing as it was a sunny day, I decided it would be nice to drag my carcass outside.

Went for a lovely local walk with my partner along some fublic puffpaths (public footpath to everyone else)

I had a few wobbles along the way where my stomach started groaning and I thought Oh god please don’t let me be caught short (them brambles, sparse woodland and dry leaves didn’t look like good toilet ground)

A year ago I thought I’d be trapped in the house more often and that would be my life – but things are so changeable, I figure it’s best to seize what you can when you can as you don’t always know what’s around the corner. (Here’s hoping it’s a very convenient toilet)

Happy Trotting Everyone

Out of the “Gut”ter

Somedays my Crohns just feels like it wants to win, it can be a real struggle just to get out of bed in a morning and to carry on through a working day like everything is “Normal”.

When you haven’t slept a wink because you feel like dog poo warmed up, and your stomach is churning and you think you might vomit in the night – It IS a constant battle.

Today it has been particulaly pesky, and in the words of Gilderoy Lockhart Peskipiksi PesterCrohnie. (ok he didn’t say that in Harry Potter)

THE ELEPHANT IN THE ROOM has been nagging at my every thought, poking my insides where no one can see. Every twinge has been a gut wrenching reminder that it isn’t going to sod of anytime soon however much I might wish it so.

Read More

Fads, kooks and crooks, Fact not fiction

Some days I feel as though I gave myself this illness, that I should feel guilty that I have a chronic disease that can’t be cured. This is madness I know. We are constantly surrounded by news stories or articles and even other people who have no medical background telling us we ate the wrong things or didn’t exercise enough.

I have lived for many years suffering with symptoms of #ibd and felt like a fraud or a hypocondriac because my medical professionals didn’t connect the dots or didn’t believe me.

Read More

Hemo-goblin and the gremlins that go bump in the night

Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar?

That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done that much?

IRON. And no I don’t mean the kind that takes the wrinkles out of your clothes, not that I could manage it anyway I’m too bloody knackered.  Read More

Inflamm whim wham

It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon.

I had a very recent visit with my ibd nurse, this is only the second time I’ve seen her since diagnosis but on both occasions she has been amazing.

On the first occasion it was a few months since diagnosis this year and it was mainly to discuss starting the biologic humira (injection pens to you & me). This time however was to discuss how my symptoms were since starting the meds and a general overview of my health.

Read More