On saturday morning I was helping marshall a walking event with the Mothers Union group, after the walk I got talking to a few of the members about Crohns and that I had it. One lady mentioned that it would be really good if I could come to a mothers union evening and talk about the disease. Read More
Some days I feel as though I gave myself this illness, that I should feel guilty that I have a chronic disease that can’t be cured. This is madness I know. We are constantly surrounded by news stories or articles and even other people who have no medical background telling us we ate the wrong things or didn’t exercise enough.
I have lived for many years suffering with symptoms of #ibd and felt like a fraud or a hypocondriac because my medical professionals didn’t connect the dots or didn’t believe me.
Fatigue, feeling absolutely shattered after the smallest of tasks like climbing the stairs, sticking the washer on. I can’t go a day without having an afternoon nap, usually after work. Sound familiar?
That gnawing sensation that your body has been pushed to it’s limit and just wants a little rest even when you haven’t done that much?
IRON. And no I don’t mean the kind that takes the wrinkles out of your clothes, not that I could manage it anyway I’m too bloody knackered. Read More
It can sometimes feel like your medical professionals are talking gibberish, they may as well be talking swaheeli for all I know. Whether this be your gp, ibd nurse or consultant, what we want from them is less jargon.
I had a very recent visit with my ibd nurse, this is only the second time I’ve seen her since diagnosis but on both occasions she has been amazing.
On the first occasion it was a few months since diagnosis this year and it was mainly to discuss starting the biologic humira (injection pens to you & me). This time however was to discuss how my symptoms were since starting the meds and a general overview of my health.
So how did I know at first that something was wrong? I have always had mild stomach issues over the years and in my 20’s my doctors told me I had IBS.I had no reason to disbelieve them as my symptoms were quite mild, I also suffered from chronic mouth ulcers. The mouth ulcer issue I gave up on and just thought well this must be normal for me, but they have plagued me for most of my adult life. Read More
I have finally decided to take the plunge and add a blog to my site. I always wanted an easy way to share information & experiences for people living with IBD or loved ones who have it.
I will update with my diagnosis and experiences through life with Crohns Disease and hopefully it will give some comfort and help to those that need it.
Please check back for more updates, and if you want use the feedback form on the main page to let me know what you think or have anything to share.
Links I have found useful at the start of my diagnosis: